Thanks to Sean for his warm welcome in the previous post. I am happy to be part of this community and honored to be running the blog and social media presence.
I was diagnosed with Crohn’s in high school in the ’90s, back before the Internet was a thing. I remember how awfully lonely it was then. I couldn’t bring myself to attend support groups, because they always met in hospitals, so I was the only person I knew with IBD for years and years — until well after I graduated college.
From that context, social media and communities like Crohnology are a miracle. Going online with my illness has made a huge difference in my understanding of the disease, and my sense of myself. The knowledge and friendships I have gained online are invaluable, and vastly improve my life with the disease.
So I am happy for this opportunity to help provide more knowledge and a further sense of community, in whatever way I can through the blog and our social media outlets.
Here’s what I want to do:
-Most of my posts will be about research and science related to our diseases. These posts will not be recycled or copied content from other websites.
-My posts on research will be based on the best science I can find. I will try to use research that is freely available as much as possible, but I will also bring you summaries of important articles that are paywalled.
-I welcome engagement from members and readers. If you have questions, let me know. If you have ideas for posts, let me know. If you think I got something wrong, let me know. I am not perfect, and I know that Crohnology members have lots of knowledge about the disease. Email me at email@example.com.
-I will try to use evidence from Crohnology where appropriate; I think science is great, but I also think we as patients have a lot of useful experience and information about our diseases. I will ask members for input on posts I am working on, when it makes sense.
-If you want to write a guest post about your experience with the disease, with a treatment, or with a clinical trial, email me at firstname.lastname@example.org. We can’t pay for guest posts, but we will get your story in front of thousands of readers.
-I’m sorry to say we can’t run posts about fundraisers, just because there are way too many for us to give everyone a fair shot. But keep at it, and thanks for your hard work!
Thanks again to Sean. I look forward to helping our community expand its knowledge of these diseases.