Everyone with IBD looks forward to the day a cure is found. But what are you doing to make that happen?
Maybe you’ve done a fundraiser. Maybe you’ve donated money. Maybe you’ve participated in a clinical trial. That’s all important, but there’s an easier way to help fight IBD — and it requires not a single penny, drop of blood, nor sip of prep.
What you can do is join Crohnology — the social network for people with Crohn’s disease, Ulcerative Colitis, and other forms of IBD. Crohnology has more than 8,000 members from 91 countries, who share their experience with the disease to help each other feel better.
Crohnology is focused on the most valuable asset in the fight against IBD: you. Crohnology doesn’t ask you to do anything new — rather, it’s built on all the things you have already done in your struggle with IBD. People with the disease have a wealth of knowledge and experience that medical science is only just learning how to tap. When you create a Crohnology profile, our system asks you to input that knowledge, so that you can share and compare with other patients.
Crohnology then takes that information and combines it with other members’ info, so that you can see what works and doesn’t work for patients fighting the disease in the real world. This is vital information that you can use to guide your treatment and care. In turn, Crohnology partners with the CCFA and other organizations to push cutting edge research into the disease.
With Crohnology, your profile is private — it’s not shared with the public. It’s a closed community, but it allows our members to be real and open about their illness. When we share information with partners, it’s either with your consent or anonymized, so nobody can track it back to you.
If you want to help cure IBD — sign up for Crohnology. It’s the easiest way to join the fight against the disease.
Photo “testTubes” by Flickr user University of Liverpool Faculty of He… used under Creative Commons license.